About my blog

CLL is the acronym for Chronic Lymphocytic Leukaemia. CLL is the most common cancer of the blood. However, unlike many other leukaemias, CLL is incurable. Innovative research is desperately needed to provide treatments which are more effective than the derivatives of chemical warfare agents currently in use. Research however costs money.

I am going to attempt to walk from John o'Groats in the north east of Scotland to Land's End in the south west of England. Hence the acronym JOGLE. I estimate the total distance covered will be slightly over 1000 miles. The purpose of my walk is to make more people aware of this insidious disease and to encourage them to sponsor me by donating to the research groups I am supporting.

On my walk, I hope to provide updates on my progress and photos of my trip – mobile coverage permitting.
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How you can help

You can help maintain my morale by making a DONATION to Charity Giving. They will divide your donations equally between Leukaemia Research, which funds research into all leukaemias and related lymphomas in the UK and the Malghan Institute in New Zealand, which is undertaking research into a vaccine based treatment for CLL.

If you would like you can come and share a virtual day of the walk with me. Just make a small DONATION to charity giving and then contact my blog organizers at cllwalk (at) gmail.com with a photograph or avatar of whoever is to join me on the walk, with his or her name and any comments you would like added. You can also use this facility to remember a family member or friend who has passed away as a result of leukaemia or lymphoma. (Please allow for at least a 24 hour delay between your donation and the appearence of photographs.)

I would appreciate people joining me in person on the walk. If anyone from the UK walking or CLL communities would like to join me for part of a day or more it would be really helpful. Time passes much faster in good company. Contact my blog organizers at cllwalk (at) gmail.com for an accurate location, subject to me having adequate mobile reception.

1000 miles is a long way and your support, virtual or otherwise, will provide a much needed psychological boost. This walk is 3 to 4 times further than any walk I have previously attempted.

Please feel free to pass on the details of this site to anyone you think may be interested. The link is www.cancerwalker.com
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Tuesday, October 6, 2009

Afterthoughts -- Updated 14th Oct

Well we are now back in New Zealand in a spring-time that seems more like mid-winter. The woodburner and the heat pump are running and I'm still feeling the cold.

I've got Colin to post the photo Sally took of me at Land's End. It's quite helpful she took the picture as I forgot to sign the official book at Land's End to say I had finished the walk. Doh! It is a bit sad really as if someone checks the books for statistical purposes it will look as though I started out from John o'Groats but never reached Land's End. There was an official photo taken of me at Land's End but I have yet to see it and with the UK postal system in its current state it may be a while before I do.


Health Issues
By the end of the walk my sore right toe was all but healed and generally I was feeling pretty fit. When I compare the photographs of myself taken just before the walk with those taken just after I clearly look a lot healthier after the walk. My weight dropped from 71.6kg (11st 3lb) measured in Torquay before the walk to 64.6kg (10st 2lb) measured in Penzance after I finished. However after less than 2 weeks holidaying in the UK my weight was back up again to 69.1kg (10st 12lb). My home scales now put me at 69.7kg. I have had no leg or foot problems since the walk ended. The GERD, which I was suffering from before the walk, has disappeared. I stopped needing Gaviscon after about a fortnight of walking and I've not taken Losec now for 3 weeks. I did however have my first ever full blown migraine the evening of the day after the walk finished and I've been troubled with headaches on and off since, but thankfully not with the same intensity.

I had a blood test last Thursday and my lymphocyte count was in the normal range at 3.5x10^9/L and fractionally below what it was when the walk started (3.6x10^9/L). My red cell count was just in the normal range when I started the walk but slightly below the normal range when measured last week. It has been lower in the past. My haemoglobin, at 130g/L, is the lowest it has ever been, having dropped from around 140g/L before the walk. I am hoping this is just a result of the foot impact over 1000 miles of walking and not a CLL related change. It will be interesting to see if it returns to its normal level over the next few weeks/months.


Donations Closed
I went to the Charitygiving website today and locked out any further donations for Cancerwalker. However anyone who wishes to do so can still go to the links provided on this page and donate directly to either the Malaghan Institute or Leukaemia Research should they wish to do so. When I hear back from Charitygiving I will let you know the final amount we raised for the Malaghan Institute and Leukaemia Research plus any monies donated directly to the charities as a result of the walk.


Acknowledgments
Thank you all for your generosity! Many thanks also to those of you who took the time off to come and walk with me. It made my journey much more enjoyable and memorable. Thanks also to those who provided transport or accommodation or provided a laundry service and those who did 'all of the above'. I truly enjoyed your company. Thanks to those of you who came to take me out to dinner and help me relax after a long day walking. Your companionship was much appreciated. Some were old friends, some I hadn't met for almost half a century, whilst others were new friends met through the walk. Thank you one and all.

Finally I must thank those of you working behind the scenes. Many thanks Ron for you support with publicity in the UK and on the ACOR site. Thank you Colin for keeping the blog updates flowing and dealing with communications queries. Thank you Sarah for converting my text messages about donations into actual donations on the Charitygiving website. It just a pity we weren't able to maxout your credit card with the donations! Thanks to Weed for acting as a phone messenger and joining Sally, Kit, Robin to come and cheer me in at Land's End.

Finally thanks to my wife Shiel for taking down my dictated blog entries in New Zealand, typing them up and then e-mailing them for Colin to post. This was needed for the first half of the walk to Newcastle. In Newcastle I got a new phone and was able to blog directly to Colin. Shiel also provided me with transport at the start and end of each day for the last 8 days of the walk in Devon and Cornwall. This meant I could travel a more direct route to Land's End without worrying about finding a campsite at the end of the day. It also meant I had the luxury of B&B accommodation.


Kit
The biggest success in the kit area has to be my map system. I used double sided A4 sized maps on a scale of 1:50,000 downloaded from a DVD supplied by Quo. I used their maps as quite simply, at only 100 UK pounds, they were much cheaper than everyone elses. I'm still waiting to get a refund for the VAT I paid though. If they read this they might like to note I would be happy for them to pay it directly to the charities I am supporting. On most days I printed the maps to the largest size I could that still allowed me to get the whole day's walk on one double sided page. In city areas like Edinburgh and Wolverhampton however I finished up needing two maps per days walk to be able to resolve all the street detail. This however may just be a problem for older walkers, like myself, who suffer presbyopia. I laminated all the maps and never had any trouble with them on even the wettest days. In fact they made useful waterproof mats when one wanted to sit on a wet park bench. I stored the 'map in use' rolled up under a loop on one of my rucksack straps. However I think they would also roll up quite nicely around a walking pole where they could be held in place by a couple of Terry clips. The laminated maps were quite heavy so I only carried enough for about 22 days at a time. My sister posted the maps, as needed, to the nearest campsite at which I intended to stay. It appears the 'Post Restante' service is no longer available in the UK, or at least that's what I was told. I only lost one of my maps, somewhere near Pitlochry.

When I started the walk I had two pairs of old Scarpa leather boots. I estimate one pair had done about 500 miles, the other 1200miles. I started in the 500 mile pair and used them until I was joined by Shiel who brought with her the older pair. I used them for the last part of the trip. The first pair are badly worn down at the heels but when repaired are probably good for a few hundred miles more. The older pair, which were repaired just before the walk, will probably soon start to leak where the leather flexes most in the region just behind the smallest toe. They are already badly cracked. The older Scarpa boots are fantastic at keeping the feet dry. Water only gets in if it goes in over the top of the boot. I'd like to get another new pair of the boots I used but sadly they've changed the design and I don't like the new ones.

I was a bit dissapointed with the Osprey Aether 85 rucksac. I think some of the problems arose from the fact that I had to buy it via the Internet and I think I may have got a harness one size larger than I should have. I could get the harness to fit very snugly by pulling on the tension straps but I think some of the pulling may have been needed to compensate for the possibly oversized frame. This may explain why the metal frame rods punched through the harness. Two of the lid buckles also broke. I think some of the packs' weakness results from the designers reducing the amount of material used in the buckles etc to keep the weight down.

Final Photo

Wednesday, September 9, 2009

Day 65, Botallack to Land's End (Planned: Balnoon to Land's End), Wed 9 Sep

Summary
Today's Distance: ~25.8 km (16 miles)
Total Distance: 1628 km (1012 miles)
Distance to go: 0 km (o miles)

Report
Shiel put me down on the road outside Botallack at 8:40am and the final day of my walk had begun. What a contrast to yesterday. I could see where l was heading! Extensive views in every direction. Yesterday's walk would have been much more interesting in sunny weather.
I took the B3306 into St. Just, l missed the more direct route yesterday. However had l found it l wouldn't have met up with Shiel.

I took a small road out of St. Just, heading for the YHA in the Cot Valley and then a path up to the SWCP. Looking at the map now I see that the route I took was not exactly the one l'd planned. It's good to see that some things don't change.

I had a very pleasant and sunny walk along the SWCP to Sennen Cove where I am writing up the first part of this report. I'm in no hurry for once. It's only 12:15 and l've only 1.5 miles to go to Land's End.

I've just heard from my sister Kathleen that they are all waiting for me at Land's End so l can finish the walk...

I finished the walk at about 2:45pm and had an expected reception from Shiel, my sister Kathleen and brother-in-law Robin. An added boost however was that Kit and Sally were also there to greet me! They had driven down from Devon, about 150 miles, just to cheer me in. They even brought a donation with them from their friend Martin who they had told about my walk. Regular readers will remember that Kit and Sally came to take me out for an evening meal when l was in Devon. Kit was treated for PLL, a very rare form of leukaemia.

It is the generosity and friendship of such people, and others like them, who only two weeks ago were complete strangers, that will be my lasting memory of this walk. You hear and see so much gloom and doom in the press that you get a jaded outlook on humanity. To improve your outlook on life:-
1. Sell the TV
2. Stop reading the papers.
3. Undertake a walk for a charity.
You'll also be able to 'come off' the Prozac.

I will sum up in a few days time and also add some comments on kit and maps which hopefully will be of help to others. I will continue accepting donations until we return to New Zealand in early October.

Photos  -- check out page 5 and 6 of photo album for a few more photos

Day 64, Gwithian to Botallack (Planned: St. Agnes to Balnoon), Tue 8 Sep

Summary
Today's distance: ~33.8 km (21 miles)
Total distance: 1603 km (996 miles)
Distance to go: 26 km (16 miles)

Report
We had breakfast at 7:30 am and I was back on the road, just before Gwithian, at 8:40 am. The weather was overcast, tending towards rain. I reached Hayle in good time and stopped to take a photograph of the memorial to Rick Rescorla (?) who was born in Hayle and lost his life helping fellow employees in the evacuation of one of the twin towers during the 9/11 terrorist attack. I thought it might be of interest to my readers in the US, including my son Colin, who organises this blog, and now resides in Connecticut.

While taking the photograph l was spotted by a friend of Ricks who provided me with extra information about him and mentioned the fact that there is a website dedicated to his memory. He also pointed me towards a pictorial display of some of Hayle's interesting industrial history.



He also gave me dire warnings against following my proposed route across the moors. I took the road to Lelant Dons with one of my famous ''long cuts'' near Splattenridden. I stopped someone, Nick Ridge, to get local knowledge on my plannd route and he did not seem phazed by it. He also very kindly gave me a donation.

A little further down the road I met up with Chloe and Simone, two sisters down from London, who were out for a walk. They acted as my guides to near Nancledra and suggested my original route, via Amalveor, would be the easiest to follow on the ground. Walking with them was really enjoyable and boosted my morale for the day.

The boost was to be short lived however as l arrived at Amalveor to find the path obstructed with path closed signs. I rang the number on the sign to get detailed information but no one was in the office who knew about the closure, set up in April. The girl in the office rang back but only seemed to have details of a SWCP closure. I wonder if the sign was put in the wrong place as it talked of a slip near a cliff and no cliffs are visible on my OS map of the path west from Amalveor. In the end I decided to follow a parallel path about 1km south, starting from Embla.

I got to the farm road just north of Borifty without too much of a problem and found a path, not shown on the OS map that finished up near Tredinnick. Visibility was quite poor but by good fortune someone from the farm was arriving by car and I got useful information from her. I headed on a path to Lanyon Farm but took the wrong path at a fork. This added a few 100metres to my walk but I didn't mind as Lanyon Farm do cream teas, and they had no scone shortages! Recharged, I headed NW up the road towards the turn off to Little Bosullow, where I met up with Shiel.

Although the rain was now quite heavy l decided to walk on south west towards Tregeseal. I knew I would get the wrong path among the plethora of paths near Carn Keidjack, and get the wrong path I did. I finished up just south of Carnyorth. However I could see the farm builings and decided it would be quicker to walk on a farm access road than walk on the very boggy paths across the moor.

I met up with Shiel at Botallack from where I head via St.Just to Land's End tomorrow. Todays walk was long, at 9 1/4 hours but I find it easier now to continue a long day rather than get up early the next morning. The end is in sight and I've not yet told you of my observations of single industrial gloves, seen on at the side of many roads, or of my conversations with sheep and cows.

Monday, September 7, 2009

Day 63, Perranporth to Gwithian (Planned St. Coulomb Major to St. Agnes), Mon 7 Sep

Summary
Today's Distance: ~30 km (18.7 miles)
Total Distance: 1569 km (975 miles)
Distance to go: 60 km (37 miles)

Report
Breakfast at 7:30am and back on road at Perranporth sea front at 8:35am. My first day back on the South West Coast Path. l found this first section to the outskirts of St. Agnes a little vertiginous, but l'm sure most people would have no problem with it. I left the SWCP near Cross Coombe and headed via Wheal Kitty and the outskirts of St. Agnes through the Cemetary and a good path to Mingoon (?). I stopped at the shops in St. Agnes and bought a bottle of milk shake which l drank on my way to the Cemetary. I took off my pack and jumped on the bottle to sqash it and reduce its size. I then started pushing it into one of the side pockets of my pack. A lady walking by must have been watching all this action and very kindly offered to drop the bottle in a waste bin as she was heading back into town. It never ceases to surprise me how helpful passing strangers can be. Perhaps l've been reading too many newspapers.

I continued on the road through Towan Cross to Porthtowan where l wisely asked directions at a garage. I was informed that my planned route via a disused airfield was not possible as it was MOD land, so at Factory Farm l returned to the SWCP. Then followed a pleasant but at times arduous walk to Portreath. Quite a few steps to go up and down across two small valleys. On the way to Portreath l met Brian and his family out for a walk, we chatted and they very kindly gave me a donation. I stopped at the Portreath Arms for lunch where l received my second donation of the day from Martin. I went wrong when leaving Portreath and finished up heading for Illogan. I eventually found my way out on the B3301 which l followed to a turnoff at Bassets Cove where l joined the SWCP again.

I followed the SWCP to a car park just past Hell's Mouth where l met a Dutchman, another long distance walker, and we chatted for a while about walking. I then followed the B3301, with some care to Gwithian from where l leave for Hayle (and beyond) tomorrow. We had our evening meal in a pub at Phillack where l had the best salad yet supplied as a side dish to lasagne.

Sunday, September 6, 2009

Day 62, Rosenannon to Perranporth (Planned: St. Mabyn to St. Coulomb Major), Sun 6 Sep

Summary
Today's Distance: ~23 km (14.4 miles)
Total Distance: 1539 km (956 miles)
Distance to go: 90 km (56 miles)

Report
Breakfast again at 7:30am and I was placed on the road at Rosenanon at 8:55am. I decided to ignore a footpath shortcut and followed the road via Borlasevath, Tremayne and Tregamere to St Coulomb Major. My experience with short sections of paths later today, suggests l made the correct decision.

l was in St. Coulomb Major by 10:10am and rehydrated with a bottle of chocolate milkshake: 500ml of water, sugar and fat all for less than a pound! The weather improved as l walked on through White Cross and l reached St. Newlyn East by 1:30pm where l had lunch. At Fiddlers Green my troubles began. l wanted to take a path to Scotland Farm and l couldn't find it. The path was shown on my map emerging from the back of a house so l went to the house and knocked on the door. A very pleasant chap came out and said he would take me to where the path started. It was good that he did as l wouldn't have found it without his help. (Sorry l should have taken a photo.) Once l had climbed up onto the path corridor it was easy to follow; fenced on boths sides and just over a metre wide. The going wasn't too bad as some of the vegetation had recently been trimmed by the gentleman to whom l had been talking. Nearer to Scotland farm the track was harder to find and very, very boggy and l could only maintain dry feet by stepping from one clump of bog grass to another.

The next section of path was even more of a problem, but this time largely man-made rather than natural. It was only about 300m in length and joined two farm access roads which are also public footpaths over some of their length. I've attached photographs of the entrance to the path and the electric fences, barbed wire and corrugated iron blocking it (photos coming later). I've also shown how the exit to the path is still quite clearly marked, unlike the entry. I continued to follow paths, which gradually improved, all the way into Perranporth. Perranporth is on the South West Coast Path (SWCP) and l walked the section from Penzance to Minehead in 2006. As a result my feet have actually walked all the way from John o'Groats to Land's End, l've yet to walk it at 'one go' though. Tonight we are staying in a B&B near Goonhavern.

Photos
Go to page 5 of the photo album for new photos

Saturday, September 5, 2009

Day 61, Watergate to Rosenannon (Planned:Wainhouse Corner to St. Mabyn), Sat 5 Sep

Summary
Today's Distance: 32 km (20 miles)
Total Distance: 1514 km (941 miles)
Distance to go: 113 km (70 miles)

Report:
We breakfasted at 7:30am and l was back on the road in Watergate at 8:55am. Rain threatened but did not eventuate and l had an enjoyable walk on quiet country roads. I walked via Tuckingmill to St. Tudy where l arrived in time for an over 60's morning coffee and biscuit. I asked directions and was advised to ask a couple of local ladies. I was told l would have to cross the border.

One of the ladies told me how she had had to cross the border when she got married. However she went on to say that after her husband retired she got him to take her back home across the border. The border in question? The parish border between St. Tudy and St. Mabyn.

From St. Tudy l crossed the border and went via Cross Hill and Castle Killibury to Wadebridge. This required an unpleasant 1km walk beside the A39. l did however meet and chat to 3 cyclists heading north on the A39 on their LEJOG. I arrived in Wadebridge about 1:35pm where l met up with Shiel and we had lunch. Like yesterday we ordered 2 cream teas and were told, like yesterday,that they had only enough scones to make one cream tea. In fact they had insufficient clotted cream to make one cream tea. Is there a national scone shortage? I left Wadebridge via Burlawn and went past the St. Breock wind farm. Near the wind farm, on the Saint's Way, l passed 4 more cyclists starting their LEJOG.

I ended my day at the village of Rosenannon, about 3miles short of St. Mabyn, the end point I originally planned for tomorrow. We are staying at a farm B&B near Winnard's Perch and we had our evening meal at a pub in St. Coulomb Major. A friend of mine in NZ, Murray S, has suggested that my JOGLE walk is just an excuse to make a 66 day, 1000 mile pub crawl. The idea is not without merit.

Friday, September 4, 2009

Day 60, Tamar Bridge to Watergate (Planned: Thurdon to Wainhouse Corner), Fri 4 Sep

Summary
Today’s distance: 29.8 km (18.5 miles)
Total distance: 1483 km (922 miles)
Distance to go: 145 km (90 miles)

Report
Last night we stayed at a farm B&B at Hopworthy. It had very friendly owners who breed quality eventers, two of which have competed at international level. (lt may interest those planning a LEJOG that the cost for each of us last night was less than my staying at the Caravan Club site in Tewkesbury and breakfasting in Witherspoons).
I started walking from the Tamar bridge at 8:45am. The weather was much like the last few days, showery with a strong cold wind, very autumnal. I only met one other backpacker today



and s/he was progressing more slowly than l was. It will probably take many generations to finish it's JOGLE. The roads were quiet and l made good time to Whitestones where l headed south and then south west to Middle Wheatley by which time l was off my map. I had to navigate to Canworthy Water using a 1 in 250,000 car map. It was a much smaller place than l expected, with no lunch place that l could find. I climbed steadily to Hallworthy where l joined the A395 and found a pub so l was able to have a late lunch. After lunch l headed south west for about 3km and then picked up a path to an old airport. From there l headed south west, past the Crowdy reservoir,
Because l have loyal supporters in the US l decided to extend my walk today and instead of ending my walk at the Crowdy reservoir l decided to walk on for a few extra miles. I wanted to end my day(s) with Watergate, like another well-known Richard. Sadly the village is too small for a sign saying 'WATERGATE.' A couple of locals told my wife they took the name plate down during the last war and it never got put back up again. However l did manage to get a photo of the name plate of the local farm.

Day 59, Petrockstow (Dolton) to Whitstone (Thurdon), Thu 3 Sep

Summary
Today’s distance: 23.4 km (14.5 miles)
Total distance: 1420 km (882 miles)
Distance to go: 208 km (129 miles)

Report
We had breakfast at the B&B in Merton at 7:30 am and Shiel deposited me at the cross roads at North Town by 8:30. I headed west along what was at first a busy road but after 9:00am there was an appreciable drop in traffic. I took a path through a wood near Filleigh Moor, to cut off a corner, and continued to Shebbear where l found a small local store open. I was able to buy two orange drinks.

Just before Shebbear l had met two heavliy laden cyclists and had asked where they were headed. They were heading for John o'Groats via Wales and lreland, before taking a ferry to Scotland. We compared notes before heading our separate ways.
From Shebbear l continued west, first via a very boggy path and then via a quiet minor road to Oxenpark, where l then headed south west towards Woodacott and then Holsworthy. I arrived at the A388, 1km north of Holsworthy, just after 1:00pm and found Shiel waiting. We arranged to meet up again near the church and then go to lunch. On closer inspection however l found there were two churches so by the time we eventually met up in the centre of Holsworthy it was 1:50pm. We went to a small cafe for a cream tea each but had to make do with one between us as they only had two scones left. We parted in Holsworthy at 2:55pm with the arrangement that l was to walk to the bridge over the Tamar on the small minor road about 2 miles north east of Whitstone. I made better time than l expected and was there by 4:30pm.

We both then travelled by car to our B&B in Hopworthy where l had a good soak in the bath before we headed for an evening meal at the pub in Pyworthy. To get to Wainstone Corner, the original end point for tomorrow, would only be 12km. However l intend re-routing slightly. I plan to walk to Whitstone and then head for Middle Wheatley. I then drop off the edge of my map! Following a road atlas, 1:250,000, l plan to head roughly south to South Wheatley and then south west to Canworthy Water, where l will again get back on my map, meeting my old planned route about 0.5km south of Trelash. I then plan to continue on towards St. Mabyn stopping at some convenient location l reach between 4:00 and 5:00pm.

Wednesday, September 2, 2009

Day 58, Romansleigh to Dolton (Petrockstow), Wed 2 Sep

Summary
Today’s Distance: 23.4 km (14.5 miles)
Total Distance: 1420 km (882 miles)
Distance to go: 208 km (129 miles)

Report
I had a full english breakfast at the B&B and then Shiel put me back on the road at Lightleigh Cross at 8:45am. I went on minor roads via Spittle Farm to Elstone and then on a path to Colleton Mills. It was overcast, but not raining, at first. Shortly after crossing the A377 l was offered lifts twice within the space of five minutes. Sadly l had to turn both offers down as l headed for Dolton via Hansford Cross and Ashreignry, and then Hollocombe Moor.
The rain started when l reached the crossing of the A3124 and l was soaked by the time l reached the pub in Dalton, around 1:00pm.

There l met up with my wife, Shiel, and my sister and brother-in-law who had traveled up from Torquay for the day. We had a great time chatting, but service was slow and it was after 2:00pm before we went our separate ways. The rain started to pour down as l headed for the Tarka trail and Petrockstow. I got to Petrockstow by about 4:50pm and stopped at the junction in North Town where Shiel will drop me off tomorrow.

We are staying at a nice B&B in Merton and had our evening meal at the pub in Petrockstowe, The pub had a great atmosphere and served excellent food. One of the best meals I’ve had on the whole trip.
As my stopping points are no longer constrained by campsite locations tomorrow l will be heading in the direction of Holsworthy rather than Thurdon and hope to join the planned route again at Pyworthy.
I was carrying slightly less weight today as Shiel took my dirty washing to a launderette in Great Torrington. In a single visit she managed to melt my two polypropylene vests in the dryer, something l had been unable to manage in two months of traveling.